The Island Goddess Pages        |
a non profit organization         |
www.islandgoddess.org
    
     
  
  
  
  
    
      
  
  
  
 
 
 
 
 
 
 
 
 
 


Olakino Maika'i
Island Goddess Health and Lifestyle
 HIV-STD Education and Prevention, Substance Abuse






















           
  





















                                                                                                           
                         





















          













































 Living for today, Young and HIV positive
BY BRIAN VAN DE MARK
There simply is no easy way to begin this article. If for no other reason, it is because most of us have trouble reconciling what it means to be 21 and HIV positive – or 19 or 24 or 16. Statistically speaking, though, most studies – including those released by the Centers for Disease Control and Prevention (CDC) in Atlanta – indicate that nearly half of all newly infected persons in the United States are under age 25, and one-fourth are people under age 21. HIV-related illnesses are the sixth leading cause of death in the United States for those between ages 15 and 24. The CDC reports that, globally speaking, 6,000 persons between ages 15 and 24 become infected with the HIV virus each day. Each day! And in the United States, nearly a quarter go undiagnosed.
Terry Klein lives on the streets. He is 18 years old. His day was Dec. 13, 2003. Or, at least, that’s the day he believes he became infected. He managed to make his way into a bathhouse and “became the life of the party.”
“At the time, I remember feeling so beautiful,” says Klein. “All these men wanted me. It was this incredible skin-on-skin connection. I was being touched and kissed, and, well, what I thought was being loved.” Instead, Klein says, he left that night infected with HIV.
According to leading studies, such as those done at the University of California, Berkley, like Klein, for a large percentage of the gay population, their first contact with the gay community is through sex – either accidentally or with purpose. And the younger the person, the less likely he or she is to know what constitutes protected sex. And, like Klein, the younger the person, the more likely they are to put their trust in the more experienced persons involved.
“I couldn’t imagine that someone would actually [have insertive sex with] me knowing they were positive,” Klein says. “But, hey, that’s what being 15 and not knowing any better will do to you.”
Klein is unable to hold down a job or keep steady housing. He isn’t naïve, though, nor does he dwell in the land of self-pity.
Option 1: destruction
“It’s simple,” Klein says. “When you use drugs, no one is going to let you stay very long.” And he isn’t referring to HIV medications. Klein admits to being a frequent user of crystal methamphetamine. And most public housing facilities have a zero-tolerance policy on drugs or alcohol.
“I don’t figure I have that much longer to live anyway, so I figure live for today,” he says.
University of California, San Diego, has an Anti-Viral Resource Center that deals specifically with HIV-positive youth. Anthony Johnson is an intensive-case manager whose focus is the at-risk populations that may fall out of care due to psycho-social issues like drugs and homelessness.
“In our case loads, 75 percent of the youth we are seeing have a drug history,” Johnson says. “Mostly it’s crystal methamphetamine.”
And of those who come in and get tested and find out they are HIV positive, how many immediately see a wakeup call and quit their crystal methamphetamine habit?
“None of them are completely done,” Johnson says. “Not a one. Later on, over time and with therapy, with counseling, with understanding the effects it has on the body, there is a pendulum swing, and people begin to understand.”
According to Johnson, Klein is one of over 400 HIV-positive youth who are homeless or in need of housing in San Diego. For Johnson, this is a key element in treatment.
“Housing – and I mean stable housing – is one of the primary components in getting treatment,” Johnson explains. “It is hard to be on medication, to focus on your health care, if you cannot afford a place to live.”
Homelessness is multidimensional in the issues it presents, Johnson says. It is not simply the lack of some place to sleep, but also the lack of health and nutrition, organized social or recreational activities, as well as the increased levels of poverty and social isolation.
Klein’s case is not such an unusual case for Johnson.
“When a young person is diagnosed with HIV, we see a range of responses, some real extremes,” Johnson says. “I would say that about 10 percent of the youth we see go into what I would call a destructive phase. They do crystal, they party, they are not going to address the real issues at hand. They avoid medical care dealing with their HIV.”
Option 2: denial
However, explains Johnson, about 50 percent or so of those who fall between the ages of 19 and 25 and are newly diagnosed go through a period of denial.
“These young people are aware of their positive status,” Johnson explains. “They get their results here in the county, perhaps at UCSD; we meet with them right then and there. We might hear back from them within a week or so about a question and then that is it. No more follow-through, no further acting on this information, nothing.”
Joseph Carroll is 23, and was diagnosed two years ago after his partner disclosed his own positive status.
“But that was two years into our relationship, and by then I just assumed we were monogamous and we had both tested negative at the beginning of our relationship,” Carroll says. Carroll’s partner admitted to having slept with a number of men during their relationship; men with whom he frequently engaged in unsafe sex. When Carroll’s partner found out he was positive, Carroll says “he waited almost a year to tell me because he was so ashamed and afraid of what I would say.”
The Journal of AIDS published a study in April by the CDC that reported that in five of six U.S. cities, 77 percent of the gay and bisexual men who were HIV positive between ages 15 and 29 were unknowingly exposing their male and female partners to HIV. The CDC’s Young Men’s Survey took place in Baltimore, Dallas, Los Angeles, Miami, New York and Seattle.
Of those in the study who engaged in unprotected anal intercourse, 48 percent said they hadn’t used condoms because either they “knew” they were HIV negative, “knew” their partners were HIV negative, or perceived that their partners were at low risk for infection. In fact, among those infected, intercourse without a condom was more highly associated with having a steady partner.
And Carroll “knew” both he and his partner were HIV negative. Not to mention that this was Carroll’s first long-term relationship. Carroll’s experience falls into the 59 percent in the study who perceived themselves to be at low risk of being infected, because he was young, had previously tested HIV negative, had never been diagnosed with a sexually transmitted disease or infection, and was in a primary relationship that was understood to be safe and monogamous.
Nowadays, Carroll says he simply prefers to block it out.
“There must be a reason I was infected,” says Carroll, “but I’m not out looking for it. When I think about how it happened and all of that, I’m just too pissed off, really. And frankly, I think the side effects of medications and the pressures of all of the doctor stuff would be too much. I would prefer just to let sleeping dogs lie. So I would rather just live in a world where I don’t have to think about it. It was like having a bombshell dropped on me. I don’t want to be in the middle of that explosion. Some call it denial. I don’t. I call it a conscious choice to not deal with it. And that’s my right.”
The issue here, though, says Johnson, is that people like Carroll aren’t saying anything or doing anything. They are not getting medical care. They are not seeking social or psychological assistance. They have no idea what thei






















Aggressive HIV Strain Found in NY
By Marie Auyong  http://www.apaitonline.org/newsarticle
In early February, reports of an HIV "superstrain" came out of the New York City Health Department. The subject in question, a 40-something gay man, had a strain of HIV which advanced within four months into full-blown AIDS. Since then, the individual´s health has only responded to one of 21 available drugs. Not since the early 80´s, when HIV/AIDS was first named, had medical officials seen someone deteriorate so quickly. Soon thereafter, many public health officials were careful to state that although there wasn´t necessarily a new "superstrain" on the loose, more research had to be conducted to determine the virus´ severity in terms of its progression and extent of infection.

Thusfar, the response by AIDS social service providers has been complicated. The New York Times announced the discovery about the virus with the headline, "Report on new form of HIV brings alarm, not surprise." This lack of surprise was partially fueled by an expectation on the part of researchers that a drug-resistant strain of HIV could emerge. Social service providers had also began to document the problem of "safer sex message burn-out," in addition to the rising role that crystal meth plays in risk factors for HIV. Initially, however, some activists considered starting quasi-vigilante efforts-including disrupting Internet chat arranging for sexual liaisons for example, or confronting participants at sex parties.

What this means for the gay community, however, is a potential crisis that it must actively confront. While worldwide the HIV pandemic is generally caused through heterosexual sexual transmission and intravenous needle sharing, in the United States HIV has largely been limited to MSM (men who have sex with men) behaviors. HIV´s history is a narrative that continues to dominate gay culture and consciousness, but less so in the past 15 years with the advent of life-prolonging HIV treatments. Social service providers have already documented the rise of sexually transmitted infections (STI´s) in young people 18-24-who never had to live through the onslaught of deaths their older mentors did-to indicate the decrease in urgency they might feel about the disease.

Furthermore, with a new strain that is still so little understood, and in a political climate that has been-let us say, slightly less than enthusiastically supportive-of research in traditionally marginalized populations (drug users, sex workers, transgenders, and gay men), no one can predict what kind of backlash could occur towards the gay community.

While it probably will not do much good to panic about an isolated case of a drug-resistant HIV (about which we still know very little), these investigations are significant because they point to the future of HIV prevention and treatment: that is, addressing the underlying causes of STI´s. Today this means crystal meth usage, the culture of partying, and public health campaigns which apparently don´t register on the radar as strongly as they used to. The Centers for Disease Control have also initiated new prevention methods focusing on positive individuals, which emphasize testing and partner notifications/counseling. For HIV-positive peoples, this also means a call-to-action to protect themselves and their partners from superinfections.

One of the major continuing challenges of HIV work is preventing a disease which carries weighty stigmas, both for its affected populations and transmission methods. How to effectively address the socio-economic-physical causes of HIV in a compassionate manner, while maintaining the assertive overtone needed in prevention messages, requires a delicate balance. In the face of this aggressive strain, APAIT will have to adjust once again.   
r viral load is or their T-cell count. Unlike Carroll, Johnson says this kind of denial typically only lasts about four to five months.
Option 3: balance
If 10 percent go into what Johnson describes as the destructive stage and around 50 percent go into what Johnson describes as the denial stage, where are the rest?
“Then there is the other half,” says Johnson, “who are right on it from day one. We get them in for an appointment within the first week, we begin health education, they are calling in with concerns, they are aware of their numbers and what they mean. They understand what safe sex is, and we begin discussions around disclosure, relationships, and coping with those issues that arise with being HIV positive.”
For Josh Royle, 21, that is easier said than done. Royle was diagnosed as HIV positive on Sept. 2 last year.
“When I was in high school,” says Royle, “I thought I would probably kill myself if I ever became positive. I mean, it seemed like such a death sentence anyway. It was the one thing I feared the most.”
In fact, most studies show that young people who self-identify as gay, lesbian, bisexual, transgender or questioning attempt suicide at a significantly higher percentage than other young people (somewhere between 25 and 30 percent, by most studies). Factor into that equation the news that you are HIV positive, and most researchers would agree that the number skyrockets.
In an article by Daniel G. Taylor called “Homelessness, Sexual Abuse, Family Rejection: HIV and Gay Youth Suicide,” Jaimey Michael-Richards, a genetics researcher, says: “The connection between HIV and suicide cannot be ignored. Many people with HIV do kill themselves, but it’s not simply because they have the virus…. Suicide is a topic people get into when they get sick, not when they’re diagnosed. Some kill themselves when they’re diagnosed with HIV, some months later, and some not until they are given an AIDS diagnosis. Often people decide to take themselves out when they are given an AIDS diagnosis. Often people decide to take themselves out when they get to a certain point. It’s when you lose your value of life. When I feel I can’t conduct a conversation, for example, that’s when it is time to go.”
Royle believes his infection happened one of two ways. He was dating a guy at the time who assured Royle that he was negative, even though he knew he was positive. Royle, like many young people, trusted his boyfriend, and they had unprotected sex. The other possibility, Royle explains, is that he was raped in Los Angeles. Royle never reported the rape. He was sick in bed for eight days straight. In fact, after the fourth or fifth day, he couldn’t even get out of bed to go to the bathroom.
“It’s unclear which it was,” Royle says. “It had to be one or the other – or both.” Between the two, Royle says the fears were enough to drive him back to his thoughts of suicide in high school.
However, suicide wasn’t his course of action.
“I said to myself, ‘It’s alright. It’s not the worst thing, and it’s going to be a difficult life adjustment, but nothing is impossible,’” Royle recalls. “I’m still the same person; I just have to be more careful.”
By that, Royle isn’t talking about sex.
“I have to start taking better care of my body,” he says. “I have to be able to recognize signs of problems or changes within my body. I have to build up my defenses for those who might be closed-minded. I have to educate myself and others.”
The real heroes, says Jerry Turner of San Diego Pozabilities, a social group for HIV-positive men, are the young people who are able to struggle through either their initial destructive or denial stages – stages he avers every person has the right to go through – and then find a balance. Like Royle.
“Being young and positive is devastating,” says Turner, 61, who was diagnosed himself in 1985. “I don’t care whether you’re talking about the ’80s and ’90s, when being diagnosed meant you had only a few months to live, or whether you are talking about today. Fears that young people have are the same: horrible social stigmas, lack of social systems, and lack of awareness of HIV services and organizations.”

he moment you hear the words
“At first you are so raw psychologically,” says Rafael Acevedo, who was diagnosed three years ago on Dec. 9, 2002, at 27 years old. Acevedo is very open about his fears of learning his status. “I was afraid of the burden to my body and mind. I wanted to avoid hearing those words at all costs.”
After all, says Acevedo, he had been tested every six months or more since he was 18 years old, and he had only been with trusted, loving men. Like so many young people, he believed he was invincible.
The CDC ranks California as ninth in the nation for sexually active adults who have been tested for HIV, reporting just at 50 percent, but California doesn’t even fall in the top 30 of states whose sexually active adults have been tested for HIV in the last 12 months, at around 34 percent.
And while there are lots of reasons these numbers could be skewed, says Johnson, there is no arguing the fact that a large percentage of people – mistakenly – believe they are not at risk, or are simply too afraid to hear the diagnosis. And this, researchers say, is what is propelling this epidemic.
People get tested for various reasons, some because they follow the recommended guidelines to get tested every six months. These are the ones who may fear waiting for their results, but who assume they will be negative. For others, their results are feared in a far more intense way. For some, it’s because a condom broke. For others, like Royle, it could be due to rape. Others end up sick and in the hospital with flu-like symptoms.
Regardless of the expectation, reactions are as varied as the individuals receiving the results.
Acevedo says he was emotionally frozen when he learned of his status. He explains how he turned that emotional freeze into education.
“I allowed my brain to take over,” explains Acevedo, who has a master’s degree in counseling and is the co-founder of San Diego Young Positives, a social group for those who are HIV positive between ages 18 and 35. “I needed to know what my antibody load was, what an antibody test versus a viral load test was. Where are my resources? Who should be my physician? I wanted to get my hands on every piece of education I could. But I wouldn’t allow myself to feel anything.”
Justin Newman’s reaction was entirely different. He is 24, and was diagnosed last year in March.
“My doctor had already told me it looked like an HIV infection,” Newman says. “He said, ‘We don’t know, but we can’t rule it out. That’s more than likely what it is.’ At that moment, I was like, ‘Oh my God, I hope not.’ But somehow I knew. I remember having protected sex with this guy and the condom broke. He was bleeding everywhere. I wasn’t worried at first, because he had told me he was negative anyway. After he saw that, he admitted he was positive. But I was hoping for the best. When I came back in for my results, I didn’t know what to say. I was literally speechless for about an hour. It was one of the most awkward moments of my entire life.”
But don’t mistake Acevedo or Newman’s current states of mind with their initial reactions. In fact, if there is one thing that all these young people seem to have in common, it is that who they are today is an evolution from the moment they learned their HIV status.
“For the first year, I felt like I was a walking disease,” Acevedo says. “I felt like it was so obvious that I had HIV, that I had this contagious and deadly disease. Coming to grips with that was like coming out all over again.”
For Royle, after being sick and in bed for eight days, he went to get tested. His test was negative.
“That was on the 23rd,” Royle says. “I knew it was wrong. I went back to the clinic and was [re]tested, and sure enough I was positive.”
Coming out all over again
Shane Frey, 24, who was diagnosed on May 13, 2004, would be one of Jerry’s heroes.
Although diagnosed in 2004, Frey says he knows he was positive long before that.
“I just know,” Frey says. “The play that we had was capable of exchanging the virus, and the last time I had tested I was negative. The guy I was playing with says he was negative, and I would like to take him at his word. I was very close to this person, and he wasn’t the kind of person to lie. I only found out later that he was positive.”
The fact is Frey wasn’t surprised at his diagnosis all.
“At the time, I was using drugs heavily,” he says. “It was so irresponsible and I just didn’t care. I was young and coming to grips with being gay. I was abused as a child, and I didn’t have the best self-image. I had an abusive, alcoholic stepfather who kept telling me I wasn’t good enough. You hear that long enough, it gets to be in your head. That made me believe I was something less than I actually was. And then to realize I was gay. I guess I was slowly trying to commit suicide. The drugs and the sex were just my own way of doing that, I guess.”
Adam Fisher is 21 and he was diagnosed at 17 with HIV. He is what one might call a “bug chaser” or a “charge chaser.” Fisher says he will “celebrate his fifth anniversary as positive this spring.” When Fisher was first coming out, he says he noticed that all the nice men, the men who seemed to care for him as a person rather than a young surfer, all had one thing in common – they were HIV positive. But, Fisher recalls, they were unwilling to date someone who was negative.
“There were too many emotional issues with being sero-opposite,” says Fisher, who continues to date only HIV-positive men. “I tried really hard to understand why someone wouldn’t date me just because I was negative. So, basically, I decided I would just become positive.” In a way, Fisher argues, he needed to be positive for his own happiness.
Fisher is unflinching – and unapologetic – in his decision, and says he went to a lot of trouble to become positive. Drugs, bathhouses and sex parties were part of his normal routine. He would get tested every few months to make sure.
“I wasn’t completely stupid,” Fisher says. “I knew I wanted to be positive, but I didn’t want to die. I needed to know as soon as possible so I could start my medications and things.” What Fisher needed was to belong to that group of HIV-positive men. It was, he says, like “wanting to get into a country club and realizing you’re black.”
But Shane Frey wasn’t deliberately seeking to become infected – at least not on a conscious level.
Frey explains that accepting his diagnosis was part of his path toward enlightenment. In short, he says, “I had to grow up fast.”
Frey, who is now in recovery and no longer uses illegal drugs, finds that his diagnosis has helped him become the person he was to become.
“You reach an age where that inner child is still inside you as an adult, and you are trying to block out all the bad stuff,” Frey says. “And you say, ‘I’m not any of those things.’ Having a life-threatening illness that few others have makes you much more aware of who you are supposed to be.”
Unfortunately, says Frey, the young man who infected him passed away three months ago.
“He couldn’t stop doing crystal,” Frey says. “So eventually it ate him alive. He was an amazing, loving person who was swallowed by addiction.”
The person most grateful for Frey’s courage in standing up to his trials is his mother, Cherrie Cusumano.
“We had talked about the fact that he might be positive for awhile, even before he was actually tested. After he decided to go in and get tested, he called me. At first I was shocked,” Cusumano says. “I thought he had AIDS. I didn’t know the difference between the two. I was devastated that he would die right away. But we became closer, and we are spending as much quality time as possible together.”
Cusumano’s primary fear is that she might have to bury her son.
“It’s pretty unfair, really,” Cusumano says. “That is not how it is supposed to be, but I think about that all of the time.”
Frey recalls that this concern – of a mother having to bury her own child – was the first thing she said to him when he disclosed his status.
“She looked at me and said, ‘If you die before me, I will kill you myself,’” Frey says. “But I have a great sense of my life. I’m not going to die before her.”
“Family and disclosure is a very difficult thing,” Johnson says. “The age group we’re talking about, most of them are still living at home or going to school and somehow being supported by parents. Disclosing your status brings back all of the gay connotations and emotions the parents went through the first time.”
The question is, then: Are the parents strong enough to handle this “second coming out”?
Frey’s mother is. In fact, Cusumano has become one of her son’s leading advocates, and, by default, one of HIV’s most outspoken moms. Cusumano was determined to become educated about the virus. After all, her first reaction was that her son had AIDS and that he would be dead within a matter of months.
Two years later, Cusumano is still learning – and talking.
“I don’t think this is being taught in high schools properly,” Cusumano says. “How else do we explain how rampantly it’s growing? Even I get tested every six months now. And I tell everyone I know to get tested. I stress the education element.”
Cusumano isn’t playing around, either. “It is so important to me that people understand my son, my Shane, is normal. He just has HIV. He’s not a leper, and it really angers me when people label him. I know how they feel. I used to be uneducated. I used to worry about what would happen to me or others in my home if Shane left a comb lying around. But you have to become educated. I want to know what the symptoms are going to be in the beginning, the middle and the end. I want to know what he is going to be going through. Doesn’t every mother feel that way about their child?”
And Cusumano takes some of her courage from her son. 
“My son is open about being HIV positive,” Cusumano says. “If he can be that brave, then so should I. I tell everybody. I am constantly on the lookout for something to help him. If I see a new product out, I find it and make them send it to my son to see if it will help him.”
Beyond just education and love, Cusumano offers her motherly advice, too.
“I try to encourage him to be honest,” Cusumano says. “I remind him how he got it, about the guy who was not honest with him. I want him to live with his integrity. If there’s a relationship or sex involved, I want him to be upfront with that person. It is so important to live an honest life. Surely, that is something Shane has learned from this experience. Maybe we can help others through our family’s experience.”
Royle’s parents are supportive, as well.
“My parents were kind of glad to find out,” Royle says. “All they knew was that I was really depressed and had stopped going to work. They were relieved. It was something they could handle. It was a disease they could understand. And they then understood the depression wasn’t uncalled for.”
Like Frey, Royle says he simply had to take the love that he could get and turn that into energy that would propel him forward.
What does life look life for Royle? “I have a lot more hopes. I didn’t used to like myself. I have learned to care about myself and for myself. I have a place that I now can fill with love. There is just too much potential. I don’t know how long I will live, though I have always thought it would be a long time. Now it is more questionable, less definite. But at least now it doesn’t scare me. I am not afraid of dying. But I am not afraid of living, either. In the next five years, I am going back to school to study theater. I know this sounds silly, but I will be on Broadway one day.”
Well, says Carroll, nothing could sound less silly. “Can you imagine any Broadway star not saying that?”
In fact, studies show that most people living with HIV are living much longer, fuller lives compared with 20 or even 10 years ago. Advances in medication and education have made it possible for people like Turner to be living productive lives 20 years after being diagnosed.
“Life has changed a great deal for people newly diagnosed,” Turner says. “It certainly isn’t universal, but by and large, people are living much longer lives than we who were diagnosed in the ’80s or ’90s ever hoped to live.”
And those differences, says Turner, leads to some very positive social and emotional changes.
“One of the biggest changes is how people view their money and health and future,” Turner says. “When our community was first learning of this disease, people threw their hands in the air and awaited death.
“And doctors don’t just sit there anymore, either. They know how to handle the issues, both the medical and psychological. There are more choices, and the doctors and support groups are putting them forward. This difference in social and emotional changes leads to new expectations. And these new expectations lead to a new courage. Now a person can be diagnosed with HIV and still look forward to a healthy future, given the right approach. In many ways, it’s just not a death sentence anymore.”
But don’t say to Frey, “Well, at least it isn’t a death sentence anymore.”
“That is the most negative thing for me to hear,” Frey says. “Imagine having cancer, being sick every day, and being told, ‘Well, at least there’s chemotherapy.’ Don’t tell me HIV isn’t a death sentence anymore. It threatens my life every day.”
Royle agrees.
“Everyone says that when they first find out,” Royle says. “I hate that expression. It makes me sick. Because I’m not through mourning my loss, and having it trivialized is really difficult for me to bear. Being diagnosed with HIV was the most important thing in the world to me, it was the thing I feared the most, and when it happened, I was dumbstruck. So to trivialize that with those simple words in unforgivable.”
The loss Royle refers to isn’t the loss of his T-cells or his HIV-negative status.
“I guess you could call it the loss of my innocence, my naïveté, my optimistic, playful youth,” Royle says.
That’s a pretty grown-up answer for a 21-year-old, says Johnson.
“Being diagnosed with HIV is a life-altering experience,” Johnson says. “It puts someone in the position of acknowledging their own mortality. It’s a grieving process, where you are grieving a loss of lifestyle.”
Newman says he knows the grieving process well.
“I had never thought of myself as ever being positive,” Newman says. “In fact, I was one of those guys who if someone hit on me and I found out they were positive, I would turn [them] down because of their status. Now it puts me in their place. It’s opened my eyes.”
Newman says he is still getting used to being positive.
“I was never one of those people to rely on medication for anything,” he says. “Even if I had a headache, I wouldn’t take aspirin. Now I have to take extra steps, like taking the time out of my day, every day, to remind myself to take my medications. I used to hardly ever go to the doctor, and now I go literally every month. I can’t eat raw fish because of the bacteria. I used to work in construction, putting in 12-hour days, and never be tired. Now, at most, I can pull six hours before I get tired and need a nap.”
Rick Linell is 22 and was diagnosed a little over a year ago. He talks about his life changes, and sums it up like this: “You know that book called Don’t Sweat the Small Stuff…and Everything Is Small Stuff where it tells you to not worry about little things? I think that’s bullshit. Frankly, after being told I have HIV, the small things are all I have control over these days. The big stuff – death, dying, family rejection – I have no control over those. But whether my fries are crispy, now that I can control. And when you’re dealing with something as out of control as being 20 years old and diagnosed with HIV, buddy, you better believe you need to have some control on something, or you’re likely to go insane.”
Newman is really clear about his biggest fear: He doesn’t want to be a burden on anybody else. In fact, Newman says he hasn’t really dated since he was diagnosed.
There are a lot of reasons why people might not date immediately after their diagnosis, says Johnson. For one, they may not feel attractive, either physically or emotionally. It may depend on how they were infected. If it was a very negative sexual experience, like rape or deception, the whole idea of intimacy may be a factor. Also, disclosing one’s status can be a very vulnerable experience.
Newman is not alone in that area.
Chris Gomez was diagnosed in 2001. He is 26 years old now.
“Dating is a tough cookie,” says Gomez, a former Center board member. “When I was first diagnosed, I viewed myself as damaged goods. I was a hopeless romantic, a Latino who was brought up to be in a monogamous, straightforward relationship. But then I became uncertain of how long I was going to be here, and then there was the whole question of when to tell someone you’re positive. In the beginning, before there is time for an attachment? Or do I wait a few weeks or months after we have a chance to get to know one another?”
For Kaleb James, co-founder of San Diego Young Positives, the answer is simple.
“I tell them straight-up,” James says. “It weeds out the bad guys.” James rarely beats around the bush in any conversation. He moved to San Diego from a small town in Utah called Milford the day after he graduated high school. James’ parents disowned him after he disclosed he is gay, and he moved to San Diego with $600 and a fierce determination to succeed in life.
James works as a manager for a radiation and chemical safety services company and models on the side. There is little about the James you meet today that would reflect the fear, loneliness and disappointment of the teenager who arrived in San Diego from a graduating class of 30. There is little in James’ swagger that would tell you the pain experienced in losing every one of his friends when he disclosed to them he was HIV positive. Like many young men who sero-converted, James was in a relationship with someone who said he was negative but knew otherwise.
“I was more hurt about having been lied to and deceived than I was about having been infected with such a horrible disease,” James says. “I cannot change the fact that I am HIV positive. I can only change how I react to being HIV positive.”
For James, that means being upfront and honest from the get-go.
“A lot of people are shocked to learn I am HIV positive,” James says. “I hear things like: ‘You don’t look sick,’ or ‘You are too young.’ I guess the point is: HIV doesn’t discriminate.”
For many positive young people, there are a lot of reasons why it would make sense for two people who are positive to date.
“When I was diagnosed, I thought, ‘OK, now I can only date poz guys,’” Gomez says. “They know my pain. But then there are so many other issues, too. You could have different strains of the virus, and many guys who are positive figure it is OK to have unprotected sex with other positive guys. There is still so much education to be had. So I treat each relationship with respect.”
For others, that kind of self-confidence doesn’t come so easy.
Paul Morgan is 25 and was diagnosed at age 18. Since his diagnosis, he has never had sexual relations with another person.
“It is one of two things, or likely a combination of both,” Morgan says. “On the one hand, I simply cannot stand there and tell someone that I am positive for fear of the look on their face. And on the other, just the very outside chance that I would give someone this disease – and yes, in some ways I mean the virus, but in many other ways I mean the daily burden of living with my own mortality at such a young age – is unbearable.” 
According to Johnson, Morgan is not such an uncommon case. About a quarter of all newly diagnosed young people go into a period of abstinence, either for lack of sexual desire or for fear of infecting someone else. This is common for about a year or so, Johnson says. After that, a quarter of those individuals will continue with abstinence.
Royle, who, like James, lost a lot of his friends when he disclosed his diagnosis, likely understands Morgan’s feelings.

“My friends weren’t well-equipped to deal with a friend becoming positive,” Royle recalls, “partly because my recent behaviors mirrored their own. They questioned a lot of their own decisions. That’s part of my issue with dating, I think – the rejection element. I haven’t had a boyfriend in two years, and I don’t do much dating. I have to focus on me.”
Part of that, says Johnson, is the psychosocial factor that there simply are not a lot of groups geared toward youth and the socialization element of HIV-positive young people socializing with other HIV-positive young people without the therapy element involved. That is, just young people having a safe and fun environment to be themselves.
For Avecedo and James, that is the exact reason for San Diego Young Positives. The group was originally formed as part of San Diego Pozabilities, but has since split in order to provide a space for young people to socialize with men of their own age. San Diego’s Imperial Court serves as the fiscal agent for the group. Avecedo estimates membership to be about 100.
Living for today
For many young people who find out they are HIV positive, they have worked the seemingly forced need for maturity to their advantage. Avecedo, Gomez and James are testaments to this. Others are dealing with their diagnosis in a way that is relevant and meaningful for them, if perhaps not what most experts might recommend. Klein, Carroll, Linell and Fisher are all testaments to this. Others might still be looking for their place, like Newman, Frey and Royle. Interestingly, though, the phrase “I’m living for today” seems to come up frequently, regardless of the person with whom you speak. What is interesting is the definition – or application – of that expression.
        






















HIV, AIDS and STD in our Community





















Melenie Eleneke
Transgender Health Program Coordinator
Filipino Task Force on AIDS    


blog.myspace.com/index

Our Global Community
My first prevention message, is an anecdotal one of service and commitment from the HIV Positive Community providing
  HIV/AIDS prevention by example.  The HIV Stops Wth Me campaign
 deals directly with sex and condom use, while it also raises important themes like responsibility, communication, and  disclosure of status.  Each spokesmodel has a personalized message to deliver to other people who are positive. The messages are hopeful and supportive, and they also make people think about what they also make people think about what they are doing to stop this disease.  I strongly believe in the work we are doing and believe that our HIVSWM high-profile visibility allows each of us individually and collectively to serve as posittive HIV+ role models to educate and empower others by example, and to speak to the power of maintaining good health and well being.  It is my privilege and pleasure to support the campaign as a Hawaiian mahuwahine and to be included among and graced by such powerful company.


A personal favorites are Sylvia and Grissel, both positive since 1986. Sylvia is a wonderful person & mother and is Grissel's role model.  Grissel empowers countless others by her courage, wisdom beyond her 17 years and teaches us that youth can have a fresh, positive perspective, and mentorship role which should be cultivated.   

Overall, this diverse group of dynamic individuals is so empowering in their message and in the work that they do from coast to coast in San Francisco, Los Angeles, Boston, Seattle, Long Beach, Oregon, San Diego -launching September 22- San Diego, and New York- in developement and soon to launch.  All the spokesmodel are acheiving much in their respective cities.
 
From the very first day that I was diagnosed with HIV, it has been my empassioned mission to mobilize into the commnity to kokua in HIV/AIDS prevention and healthcare efforts.  I'm humbled by the work that I do, the people with whom I work, and am grateful for the daily opportunity to learn while hoping to make a difference.  All the while, I do what I can while still  maintaining self-care and a healthfully positive perspective.  The work that I do with HIV Stops With Me is but one of the many ways that I serve and it provides me a wonderful sense of fulfillment for which I will continue on my path.

Finally, I'd like to pose the question, 'How doesd HIV stop with you, the reader?'  Accepting responsibility for the choices you make and accountability for any subsequent repercussions should provide a clear path for your answer.

Find more information at the Website
HIV Stops With Me and Melenie's bio.
Filipino Task Force on AIDS   
Magazine Article

HIV Stops With Me

guest contributor
posted on the website in December 2004

During most of my life, I never thought that I would openly and publicly come out as a transgender woman or disclose my HIV status. While I have several disclosure issues surrounding these two very personal identities as a human being, I have found comfort in the knowledge that sharing my life's stories have helped many people to understand on many levels the diversity there is in being HIV positive and a transgender woman.

I'm the youngest of five siblings and I disclosed to my sister and middle brother my HIV status. I didn't disclose my status to my mother because of my fear that she would not have enough of an understanding of HIV and because I didn't want her to worry incessantly. For similar reasons, I didn't disclose to my stepfather. I have since told my other two bothers and now believe that that I must disclose to my mother as I don't wish her to find out from anyone else but me that I'm HIV positive.

The path leading me to my HIV positivity was strewn with high-risk behaviors for which I bear the shame and indignity of my hurting my own spirit. Bearing this in mind, I do not regret anything that I have done but reflect on what I have done so I can better prepare others and myself for a better future. The HIV/AIDS prevention efforts of many people before me have allowed me to continue in their efforts to augment people's awareness and education in the best interest of the entire global community.

To help augment my own awareness and education in reducing my personal high-risk behaviors and struggles with recovery from substance abuse led me into the Stimulant Treatment Outpatient Program (STOP). For the past two years, I have learned many coping skills and now feel that I have a new lease on my life that I thought was nearly impossible. The network of support to which I have been introduced through my being a client of STOP has been very helpful to my healing my aloha spirit.

My Christmas birthday has always made me want to have the money with which to abundantly give during the holiday season. I do not have the money to give during this the holiday season but do have much to give in the way of my aloha spirit. My lack of financial stability cannot compare to the wealth of dear friends, family, and community network support that I have within my circle of life. It is because of these very people that I'm able to share the true spirit of aloha with everyone I meet.

My physical, emotional, psychological, and spiritual well-being is greatly and positively impacted by the fact that I feel I'm very fortunate to have so many wonderful people in my life. I'm humbled by acknowledging the many gifts I have and I try to not dwell on that which I don't have in my life.

The spirit of aloha is such a wonderful experience and I'm very happy that I can say that I feel that I'm returning full circle to a rich heritage for and of which I'm very proud and privileged to be a participant. May all who need some words of encouragement be able to share in "The Wonderful World of Aloha". Aloha is so special and can be universally translated into many languages and forms. All it takes is for one to believe in oneself and to have the true gift of being able to share aloha as aloha is shared through its own reciprocity.

Me ke aloha pumehana a pau'ole . . . Melenie Mahinamalamalama Eleneke


    Melenie was born under the sign of Capricorn on December 25, 1959 at 2:59 p.m. as the only fair-complected, blonde
    baby @ Kuakini Hospital in Honolulu, Hawaii. She is a native Hawaiian self-identified HIV+ (diagnosed in February 2001)
    transgender woman who has transitioned now for 27 years. She works as a Project/Research Assistant for two transgender
    studies @ the Health Studies for People of Color, @ UCSF Center for AIDS Prevention Studies. Melenie is an advocate
    and activist in the Hawaiian, Polynesian, API, LGBT, and HIV+ communities and the community-at-large.

    Melenie will continue working on her Health Sciences Bachelor's program in the Spring of 2003 with the ultimate goal of
    pursuing her Master's in Public Health. After conferring her MPH, she looks forward to developing a curriculum for
    University of Hawaii to pursue a Master's or doctoral degree in Hawaiian Medicinal Healing so she may provide her
    Hawaiian community gratis work that she wants to share from her rich family heritage of Kahuna Lapa'au (medicinal
    healers).

    Melenie is a haumana hula (hula student) with one of Hawaii's most prestigious and renowned halau (dance studio or hall)
    and is currently in training with her sister as an alaka'i (student teacher). She also enjoys eating many different cuisines
    and loves to design and sew her very own Polynesian attire.
























Tatiana Kaneholani
Hawaiian Kumu
Transgender Health Educator
Asian & Pacific Islander Wellness Center

Aloha Kakou Wahine u`i
 
My name is Tatiana Kaneholani from the island of Kaua`i. I live now in San Francisco working as a Transgender Health Educator for all Asians and Pacific Islanders in the bay area. My duties includes facilitating all rap groups for at the most 25 ladies who are like all of us are at High risk for HIV/AIDS  STD transmission.
 
I will be posting most of my education materials on this web-site for you to have and administer as you see fit. Please know that all information that will be posted are updated information gathered by CDC (Center of Disease Control) and other health agencies that are focused on TG issues and concerns.
 
As we move foward in life as Island Goddesses we need to understand that we are special in every way and also part of todays society and gaining new public attention from all we associate, encounter and appreciate in our private space and life.
 
The men in the world are getting more and more good looking. But looks can be deceiving. Which puts us at high risk of getting something we can't see. So observe his areas and ask him when was the last time he got tested. All these questions will make him more aware that you are concern about your health and his as well. Listen to the way he answers your questions cause you can tell by the tone of his voice if he is lying to you or just plainly don't know. The choice is yours sisters.
 
Mahalo nui loa,
Tatiana Kaneholani
 
Words of wisdom: It is not about what direction we are headed, But how we get there.
 
If you have any questions or concerns about STD tranmissions plese feel free to contact me at my office at tatiana@apiwellness.org

Asian Pacific Islander Wellness Center
HIV FAQ
Clinician Guide.pdf























Esera Tavai Tuaolo
           
On October 29th, many gay Polynesians felt a renewed sense of pride and place as former NFL star, Esera Tuaolo declared on a national television that he is gay.  Tuaolo, who is 6’3” and 300 lbs, played football for the Green Bay Packers and the Minnesota Vikings. During his interview, it showed Esera with his longtime partner, Mitchell, and their two adopted daughters, Michele and Mateo.  His admission made national headlines, but it also hit home to many of us here in the islands.

            Esera Tuaolo was born in Honolulu, Hawai‘i, on a plantation and was the youngest of eight children.  Since coming out, the strikingly handsome Esera has received a wealth of support from the gay community and has even appeared on the cover of Advocate.  We are so proud of the steps he has taken, and UTOPIA commends him on behalf of GLBT Polynesians everywhere (and now we know, we are everywhere!!)

            The joy isn’t shared by all, however, as Esera has also met with a lot of controversy, especially from his very own Samoan community.  Comments like, “you are a menace to our Samoan culture,” to “gays are wrong types of mentality,” and “gays started AIDS” have come from many outraged Samoans who are still in the closet (oops, I mean) very upset at how Samoans will now be perceived.  Yet in the midst of all the backlash, many Samoans continue to support Esera and have not felt jaded by his coming out.  In answer to some of the negative comments from fellow Samoans, Esera has responded by saying:

“Thanks for the support!  I only pray that people will understand that this decision has no reflection on my family, friends or race.  It was a quest for happiness, and it was time to not live in pain.  I am Samoan, and I am proud.  I pray that the people of Samoa will not look upon this as shame, but to realize that a Samoan will be helping thousands of children around the world not take their lives just because they feel different; but it will help them realize that they are special.  As one poet puts it ‘LOVE IS THE ANSWER,’ and as Jesus said ‘LOVE OTHERS AS YOU LOVE YOURSELF.’”

            Esera’s courage to come out has brought us a step closer to being accepted in our communities, and to acknowledge that there are large, masculine Polynesians who are gay.  Esera reasons for coming were not political, but very personal—he knows what young mufi kids go through growing up in a society that does not accept them.  Yet his hope is to save those kids from taking their own lives simply because of who they are.  Research has shown us that gay youth are at high risk for suicide, drug use, being runaways and throwaways (meaning their family disowned them), and for dropping out of school.  This holds true here in Hawai‘i where many kids runaway from home to escape the abuse.  Some end up working the streets and turning tricks just to survive.  Many of them get into abusive relationships or turn to heavy drug use because of their low self-esteem.  This all contributes to increasing their chances of getting HIV and AIDS.  Research has shown that family acceptance of their gay sons plays an important role in keeping them safe from HIV and AIDS. 

A recent study done by Raphael Diaz with over 900 men of color found that some gay men who had “hard lives” (used drugs, sex with plenty people, experienced racism and discrimination or had abusive partners) were still able to be safe and not get HIV, while others with similar lives did get infected.  What were the differences between these guys?  Raphael called them “Resiliency Factors,” of which a major one included: 

 1)  family acceptance of their gay child
 2)  growing up with a gay role model

Who could be a better role model for our kids than Esera Tuaolo?   http://www.eseratuaolo.com
























What is Harm Reduction?
By Cecil Carpenter

Most people know by now that serious, life-threatening infections, like HIV and hepatitis, can be passed from one person to another through sex or sharing injection-drug works. One approach to lowering this risk is called "harm reduction." If you are not ready or able to stop using drugs, or do not want to abstain from sex, harm reduction offers options to make sexual activity or drug use safer.

Here are some examples of harm reduction:

Use male or female condoms every time you have sex with penetration.
Use only water-based lubricants on latex condoms, not Vaseline or oil-based products, which can make holes in the condom.
For oral sex, use dental dams, not microwave-style plastic wraps, which have tiny holes in them that will not prevent infections from being transmitted.
Use clean needles for injecting drugs. If no clean needles are available, thoroughly rinse your needle and syringe twice with bleach, and then twice with clean water. Don't share your cooker, cotton, spoon or water.

And these are some of the benefits of harm reduction:

Sex may be more enjoyable, knowing it is safer.
Bonds between partners may become stronger because of the increased level of care for one another.
The risk of giving or getting HIV or hepatitis will be much lower.
Self-esteem may increase because of the care you are giving yourself.
You can enjoy a healthier state of mind.

http://www.aaip.com/programs/2spirit_newsletter.html























Health  Organizations
HIV-STD and Substance Abuse






















Ke Ola Mamo -Native Hawaiian Health Care Systems
Safer Sex






















Asian Pacific Islander Wellness Center  
Hearts and Minds 






















Seattle Counseling Service for Sexual Minorities
HIV Insite






















FFTA 
Growth House.org  
Aids.org






















 HIV Stops With Me 
HIV Insite.edu 
HIV Information






















 SFAF
Asian Pacific AIDS Intervention    
Malama Pono.org






















Life Foundation
NASPA Health Resources
HIV Testing






















AIDS Quilt
the Body.com
Seattle HIV Resources






















CDC HIV STD Prevention
Campaign To End AIDS 
Until There's a Cure Foundation






















AmFAR
American Red Cross
Women and HIV/AIDS  






















AIDSline
PEP Guidelines 























STD Information

What is Herpes?
Herpes is a sexually transmitted disease caused by two herpes simplex virus (HSV type I and type II). Herpes is transmitted from person to person via direct skin-to-skin contact during oral, anal and vaginal sex. HSV I usually causes fever blisters and cold sores on the mouth, but can also cause sores on the genitals. HSV II usually causes sores on the genitals (vagina, penis, anus) and the skin around those areas. The majority of oral herpes cases are caused by HSV I and the majority of genital herpes cases are caused by HSV II; however, since so many people are now having oral sex, type-I is increasingly appearing in the genitals. HSV is different from other common viral infections because once it is introduced into your system, it lives there forever, often with periodic symptoms or without symptoms at all.

How many people have it?
About 50 to 80% of the adult population in the United States have oral herpes. About one in five adults in the United States has genital herpes; however, as many as 90% of these infected people don't know they have the virus. There are no accurate numbers as to how many people in San Francisco have herpes as it is not a reportable STD.

Why worry about Herpes?
Genital herpes is seldom a severe or dangerous infection by itself, although it can cause psychological distress because of the nature of the sores and the length of time the virus stays in your system.

The open sores of herpes do play a role in the spread of HIV. A person with a herpes sore is three to five times more likely to acquire HIV if exposed to an HIV-positive sex partner. Also, people with HIV and herpes have an increased amount of HIV fluid in their open herpes sores, which increases the risk of transmitting both diseases to a partner during unprotected sex.
Pregnant women who have a first episode of genital herpes near delivery may transmit herpes to their infant, which could be a serious, even deadly, problem. Fortunately, infection of infants is rare among women with recurrent genital herpes.

What are the symptoms?
Many people have genital herpes but don't know it because they have no symptoms. Others have very mild symptoms. For the third group, who are symptomatic, the first outbreak is usually the worst. It lasts the longest, is most severe and often very uncomfortable. The initial sores can last five to ten days, first "weeping", then scabbing over, then healing. In addition to blisters or open sores, a person may have swollen glands, fever, and body aches. Women tend to have more severe symptoms than men.

Genital recurrences after the first outbreak seem to be linked to stress, fatigue, lack of sleep, menstruation, and genital friction (new sexual partner after a time of no sex), although more research is definitely needed about this subject. Usually recurrences are more frequent in the first year after the initial outbreak. Some people have tingling or itching at the site of the sores before they appear, which can help them prepare for an upcoming outbreak. For some people, the recurrences are so mild that they have been mistaken for jock itch, razor burns, insect bites, ingrown hairs, and the like. Outbreaks can appear in different locations over time.

What is a Herpes test like?

In most cases, experienced clinicians can diagnose an initial herpes outbreak by its appearance. There are also viral culture tests available that can tell if herpes is present and which type (HSV I or HSV II). These tests use fluid from an open sore and are most accurate during initial outbreaks and when blisters are present.

There are several new blood tests that are very accurate for diagnosis. These tests also distinguish type (HSV I or HSV II). Speak to your medical provider about these tests if you're interested.

How is Herpes treated?

There is no cure for herpes. However there are currently three FDA-approved antiviral medications that are available to treat herpes: Zovirax (acyclovir), Famvir (famciclovir) and Valtrex (valacyclovir). Using medication to treat genital herpes can help speed the healing process of an outbreak or be used as a preventative (when taken daily) to help reduce the frequency of future outbreaks.

Valtrex has also been proven effective when taken daily to reduce the risk of transmission of herpes to sex partners. The most common short-term side effects of these drugs are nausea and headaches. Thus far, no long-term side effects have been named.

What can I do if I have Herpes?
In order to reduce outbreaks, keep your stress levels low, eat well, exercise regularly and get lots of rest. Learn to recognize the symptoms that occur during the period before the lesions appear. People often describe a tingling or burning feeling during this time. Taking medications in this time period before an outbreak can abort or reduce the duration.
In order to avoid transmission of the virus to your sex partners, we advise discussing your herpes diagnosis with a prospective partner before you have sex. A potential partner would need to understand that it's possible for him or her to become infected even if you're using condoms since not all affected areas can be covered by a condom. Most good relationships can weather the news. Your partner may want to gather information and take some time to adjust to the fact that you have herpes. If you're in a serious, long-term relationship, your partner might want to test for herpes as he or she might already be infected, but without symptoms.

How do I avoid getting Herpes?
Condoms provides some, but not complete protection, against transmission of the herpes virus. If you or your partner has herpes, abstain from sexual activities when sores are present. Communication is a wonderful tool to help you and your partner(s) make decisions about what's right for each of you at any given time.


Herpes Photos
                                                                 






















Substance Abuse in our Community

Stacia Ohira
Transgender Health Outreach Worker and Mentor
Lei Anuenue Project
1505 Dillingham Blvd. #300
Honolulu, Hawaii 96817
(808) 845-4646

                          Ke Ola Mamo.org

   

Aloha as many of you know my name is Stacia Ohira, aka ah lets see I have so many aka’s I don’t know where to begin…

I will begin however by saying that I am so thankful and so grateful to be alive and to be able to be sharing with you all right now. Sometimes I often wonder with all of the high risk behaviors that I did in my lifetime why I am not HIV positive right now. Perhaps it was an intervention from GOD or perhaps it was this or perhaps it was that. All I know is that today because of my life experiences I choose to actively disseminate information to my sisters.

Growing up on Oahu and on the streets of Pauahi, Hotel, Maunakea, and the rest of the downtown areas life was a risky one. Going through the many struggles of sexual identity, inferiority, and pure fright I went down the substance abuse road besides many others. Not feeling that I fit in to society I chose to self medicate and stay high for the majority of my life. It took me going to prison and substance abuse treatment for many years to realize that I was a special person and that I am going to succeed in life.

Today I have successfully finished my education portion of my dream of becoming a Certified Substance Abuse Counselor in Hawaii. I am currently working on getting my Internship hours to be certified by the state. I work at Ke Ola Mamo on the Lei Anuenue Project. We target 14-26 year old transgender and MSM (men who have sex with men) and we work on issues such as self-esteem, life skills, HIV prevention, substance abuse and so much more. We mentor our young sisters and brothers in hopes that they use the information to navigate their lives successfully and safely. I am human therefore not perfect and I continue to learn from my many experiences and mistakes I make a long the way. However what makes things different is that I work through my events instead of jumping over them or knocking them over.

Despite many barriers such as my parents not accepting my lifestyle, my felony conviction, my various shortcomings I still press on. Today I choose to live…























Helping Friends and Family Members with Addiction

            I’m sure we’ve all heard (and sometimes participated in) the snickering and joking when someone we know is on the pipe or smoking ice, crack, batu, ma‘a, crystal, or whatever we call it nowadays.

            Our usual response is to first inform everyone we know that he’s hitting the pipe again and that he’s a mess.  Next we become fixated on every bad thing that he does and blame all his inexcusable behaviors on his lack of will power, stupidity, and, of course, the drugs; we then focus all our attention on his drug problem and forget all the other reasons that make him a beautiful person.  Eventually he pulls through and manages to stay clean for a couple of weeks, months, or even years before he relapses and becomes another mess.

Why do we have certain attitudes about people who use drugs and who just can’t seem to quit?  After all, we all continuously use drugs in some form, whether it is sugar, caffeine, nicotine, Tylenol, allergy meds, alcohol, hydrocodone (know what I mean, codeine), or even Xenadrine!  Why do we consider some drugs okay and not make such a big huff when someone uses them on an everyday basis?  Don’t all drugs make people act in different ways?  And why do we have no tolerance for people who just can’t kick the habit?

A lot of our values are shaped by our religious upbringing, the media, our culture, and education.  We have chosen to degrade certain things like drugs, prostitution, and HIV, and then lump them all into one category called ‘bad things.’  The people who are associated with these ‘bad things’ are then labeled as ‘bad’ and we ignore them, despise them, or just make fun of them.  For someone who uses drugs, relapse is a common thing that affects them on a daily basis.  It is seriously hard to quit!  And if you don’t believe me, just think about how many times you’ve tried to lose weight or stop smoking.  It’s easier said than done!  Yet we’re all so supportive when someone has a hard time losing weight.  We keep encouraging them to try harder because they’re doing really good.  But when bruddah goes off the deep end and just can’t kick the habit, we can’t deal with him anymore and we expect him to just stop.  Why is that?  A lot of it comes from our views about drugs and the people who use them.  We rarely ever think about why someone would want to use drugs in the first place.

If we understand it better, there are many reasons to use drugs, just as there are many harmful effects that come with misusing drugs.  People use for many reasons:  it gives you a good lift on those down days, it makes you calmer on those hyper days, it helps us deal with stress on our bad days, and it helps us escape life on our sad days.  It also helps us eat better, or it helps us lose weight.  Many use drugs in order to boost their self esteem or to help them feel better about the world around them.  When someone hears devastating news, sometimes drugs are the only way in which they can make sense of everything.  In many cases, traumatic childhood experiences such as molestation and physical abuse become a reason for people to self-medicate, helping to drown out the pain.

            However, when a drug is misused a person may become overly anxious, paranoid, moody (but who isn’t moody?) and many struggle with extreme depression. Their health may also be affected and sometimes it could lead to death.  The media seems to be good at pointing this out and I’m sure we know all the ‘bad things’ associated with drug use.

            So what do we do?  The most important thing is for us to acknowledge that drugs (all kine) are a part of our society whether we like it or not.  Trying to rescue or condemn bruddah from using drugs only makes us feel better, and many times, it only pushes people farther away and creates walls between you and your loved one.  Supporting a person’s choice to use drugs is difficult for many of us because we do not understand why people use drugs.  We think that just because we’ve quit something, someone else should be able to do the exact same thing.  Making bruddah feel worthless for not being able to kick the habit only adds to his and your struggle.  Whether it’s weight, work, drug use, or just life in general, having someone who can just be there, often times makes the most difference.

 http://www.utopiahawaii.com/frame.asp


Shelley Ho
Billing Coordinator, Seattle Counseling Service
     Seattle LGBT Commission, Lambert House Volunteer

http://seattlecounseling.org/
 

 

Seattle Counseling Service was founded in 1969 and is the first and oldest community mental health agency for lesbians, gay men, bisexuals, and transgender persons in the United States.

The counseling service started as part of the Dorian Society in Seattle, later expanding to become an independent organization.   It began in a rented house, with a telephone and several volunteers, who were ready to answer the phone, talk with people who dropped by, and offer counsel and support.

SCS was licensed as a mental health center and has provided services to our community since 1974.   Among the programs pioneered by SCS, the Domestic Violence Program (started in 1982) provides intervention to persons who perpetrate violence in same-sex relationships.

In 1985, SCS received status as a United Way agency.   SCS was the first gay-specific agency to receive that status in King County.

SCS began providing services for people with HIV/AIDS concerns in 1985 by providing HIV Test Counseling at the Seattle Gay Clinic.   Long-term AIDS therapy and an AIDS drop-in group began in 1986, and the AIDS Crisis Intervention Program was initiated in 1989.   In 1996, SCS placed a therapist on site at Bailey-Boushay House.

In 1990, SCS became a sponsoring agency of Lambert House, a gay/lesbian/bisexual youth drop-in center.   We are still committed to GLBT youth and currently provide outreach and engagement services to queer and questioning homeless youth who congregate on Capitol Hill. SCS has worked actively with the Capitol Hill Human Services Roundtable on issues facing homeless youth and with the GLBT human service providers who serve youth in the neighborhood.

In 2003, SCS and King County Public Health created a collaboration to house Project NEON, a harm reduction program for users of crystal methamphetamine. 2003 also brought the advent of Seattle Counseling Service Chemical Dependency Services, assuming the role previously filled by Stonewall Recovery Services in King County.

In addition to its role in provision of direct services to sexual minority community members, SCS plays a significant regional role as a psychology and social work professional training site, serving as the practice training site for an average of 4 universities each year.   Since 1992, SCS has also provided training to mental health providers statewide to increase their capacity to appropriately serve sexual minorities in their home communities.

Collaboration is important to the staff and board of SCS.   We are continually seeking ways to provide a continuum of care for clients. SCS works with other King County Mental Health Providers to advocate on behalf of clients in the mental health system. SCS belongs to the Cross Cultural Alliance, the Washington Coalition Against Domestic Violence, the Washington Coalition of Sexual Assault Programs and the LGBT Community Center.

SCS provides face to face service to over 700 individuals and families each year.